Registry Information

Introduction | FAQ's | Myths & Misconceptions | Registry Information | FAQ's About Registry Security

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General
Signing Up/Removing

Registering at License Office

 

General...

Why does Missouri need a registry?
Who manages the Registry?
Why Register? Isn't it enough to have a heart on my Missouri driver license or id card or carry a donor card?
What happens when I enroll in Missouri's Organ and Tissue Donor Registry?
Who is eligible to sign up on the registry?
Can I sign up my children?
Can I access my registry record?
How do I make changes to my registration?
Can I specify or change limitations in my record?
How do I print my registry record?
How can I print my donor card?
What if someone else has the same name that I have? How will you tell us apart?
Why do you ask for my race and ethnicity during the sign up process?
If I am traveling in another state and something happens to me, is my registration valid?

Why does Missouri need a registry?
Answer: Prior to the first person consent registry, the responsibility for giving consent for donation fell solely on the donor’s family. Unfortunately, family members were often unaware of their loved one’s wishes regarding donation. The registry eliminates any doubt that a family member may have about your decision do be a donor. Inform your family of your wish about organ and tissue donation. You will have another opportunity when you register your decision or modify your registry record by informing family and friends with an email.

Who manages the Registry?
Answer: The Department of Health and Senior Services manages the Registry.


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Why register? Isn't it enough to have a heart on my Missouri drivers license or id card or carry a donor car?
Answer: If you have a heart symbol on your drivers license or id card, the information is stored in the secure Registry. Check the Registry to make sure your information is correct. The heart on your license or id and a donor card gives consent for donation. But, these papers are rarely available at the time of death. Upon your death and without delay, your registry record is on hand. Your family does not have the burden of making a choice for you during a hard and emotional time.

What happens when I enroll in Missouri's Organ and Tissue Donor Registry?
Answer: By enrolling in Missouri’s Organ and Tissue Donor Registry, you are giving legal consent for the recovery of your organs, eyes and tissues for the purpose of transplantation, therapy, research and/or education at the time of your death. Registry information is kept strictly confidential and can only be accessed by:

  1. Federally regulated organ procurement organizations and
  2. Missouri licensed tissue and eye banks.

Such access is limited and for the sole purpose of identifying potential organ and tissue donors at or near the time of death. The Department of Health and Senior Services employees or their representative has access to the registry when required for the performance of their official duties as it relates to the registry and the donation process.


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Who is eligible to sign up on the registry?
Answer: If you are an adult, an emancipated minor, or a minor who is authorized to apply for a driver’s license, you can register with the Organ and Tissue Donor Registry. If you are eligible for an instructional permit or graduated license (usually between 15 ½ and 18), you can join the Registry, but you must provide contact information for your parents or legal guardian so they can make the final decision about donation at the time of death. When you become 18 years of age, or if you are an emancipated minor, your choice to be a donor will not require parent or guardian be given the opportunity to revoke or amend your gift at the time of donation, however, the donor agency will make every attempt to notify your next-of-kin of your decision. If you have questions related to enrollment call (toll free) 888-497-4564.

Note: In the absence of a donor designation or if a person is under the age 18 and is not an emancipated youth, the law provides a priority list of who is responsible for making the final donation decision.

Can I sign up my children?
Answer: If you are under the age of 16 and not emancipated, please discuss the issue of organ and tissue donation with your parents/legal guardians. They may complete a registration form for you. Until a young person is 18 years of age, parents or legal guardians will make the final decision about organ and tissue donation at the appropriate time. The law provides a priority list of who is responsible for making the final donation decision.


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Can I access my registry record?
Answer: Yes. You can access your record by providing specific information. You will need to revalidate your information each and every time before you access your record.

How do I make changes to my registration?
Answer: At any time you may visit the registry website, click on Update My Profile, validate by providing specific information. You will be required to revalidate each time you access the site and the click on Update My Profile. Individuals that do not have access to the web should call 888-497-4564.


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Can I specify or change limitations in my record?
Answer: Yes. Once you have accessed your record, you may change your personal information, specify limitation, and specify purpose of donation. You will also have the option to print your record and email your family and friends of your decision.

How do I print my registry record?
Answer: Access the Registry through the "Update My Profile" on the home page. Enter your unique ID information and click on the "Continue" button. You are then given the choice to print your registry record.


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How can I print my donor card?
Answer: Access the Registry through the "Update My Profile" on the home page. Enter your unique ID information and click on the "Continue" button. You are then given the choice to print your donor card. If you did not sign up in the registry and want a donor card "click here".

What if someone else has the same name that I have? How will you tell us apart?
Answer: Each person is asked to provide unique personal identifiers, such as birth date and mother’s maiden name, when they sign up. This same information is used to confirm your identification.


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Why do you ask for my race and ethnicity during the sign up process?
Answer: This information is used as a way to monitor effectiveness at encouraging people from all of Missouri’s diverse populations to sign up and record their decision to be organ and tissue donors in the registry. Also, optimal tissue matching can happen within the same racial and genetic background. For example, an individual of Asian descent may match better with a donor of Asian descent. Organs are allocated anonymously according to medical criteria. Regardless of who the donor is, all transplant recipients are thankful to receive the gift of life.

If I am traveling in another state and something happens to me, is my registration valid?
Answer: Your Missouri record, when asked for, will be shared with the local organ recovery agency. The paper will serve as a sign of your choice to be a donor and is shared with your family. Each organ recovery agency is bound to honor the other state's laws.


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Signing Up/Removing...

How can I sign up?
I do not want to sign up online. Is there another way for me to register?
May I later withdraw or revoke my consent to be listed on the organ and tissue donor registry?
May I later change my mind and withdraw my refusal to make a gift?
How can I refuse to make an anatomical gift and bar others from doing so on my behalf?
Can I take my name out of the Registry if I change my mind?
How can I remove my name from the registry?

How can I sign up?
Answer: There are several ways you can document your decision to be an organ, eye and tissue donor:

I do not want to sign up online. Is there another way for me to register?
Answer: Yes. You can complete a paper registration form and fax or mail it to the phone number or address on the form. Or, you may sign up at your local driver license office by saing "yes" when being asked about the Registry. Call 888-497-4564 if you have questions.


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May I later withdraw or revoke my consent to be listed on the organ and tissue donor registry?
Answer: Yes. You may withdraw or revoke your consent to be listed on the registry. This action does not mean a refusal to make an anatomical gift. Your agent, next of kin, guardian, or other public official can act on your behalf and make the gift. Other authorized persons may make such a gift for you despite your revocation unless you take steps to prevent them from doing so.

May I later change my mind and withdraw my refusal to make a gift?
Answer: Yes. You may amend or revoke a refusal to make an anatomical gift, as provided by in Missouri Statutes.


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How can I refuse to make an anatomical gift and bar others from doing so on my behalf?
Answer: If you want to refuse to make an anatomical gift and bar others from doing so on your behalf, you will need to execute a refusal by completing one of the steps below. Be sure to provide copies of your documentation to family, friends, or others who may be making end-of-life decisions for you. This information will not be included in the registry or be maintained by the Department of Health and Senior Services.

Can I take my name out of the Registry if I change my mind?
Answer: Yes! To take your name off of the list, fill out a removal form. Print, sign it and then mail or fax the form. Where to fax or mail the form is on the form. If you have question call 888-497-4564.


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How can I remove my name from the registry?
Answer: To remove your name from the registry, complete the appropriate portions of the application form, print and sign it, and then mail or fax the completed form to the Department of Health and Senior Services as directed at the bottom of the form. If you have questions call 888-497-4564.

If you enrolled at your local driver license office, the symbol will remain on your license or identification card until the next renewal period at which time you indicate you do not wish to be on the registry. If you want the symbol removed from your driver’s license or identification card before it comes up for renewal, you must contact your local driver’s license office and ask for a new license or id without the symbol because you have removed your name. The local office may charge a fee.


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Registering at a License Office...

You will be asked “Do you authorize a symbol to be placed on your license indicating your consent to be listed as an organ, eye and tissue donor in the donor registry?" When you say yes, the Department of Revenue transfers your registry information to the registry maintained by the Department of Health and Senior Services through a secure site. It can take up to seven business days for your registration information to transfer. If you try to access your registry record right after enrolling at the local driver’s license office, you may receive a message that your record cannot be found. Please allow time for the information to transfer. If after seven business days you are still unable to access your donor profile, please contact the registry.

Do I have to renew my donor designation on my license every time my license is renewed?
What will the symbol on my license look like?
Do I have to sign a donor card or my driver’s license?
What happens to my decision to make an anatomical gift if I lose my instruction permit or driver/nondriver license?

Do I have to renew my donor designation on my license every time my license is renewed?
No. However, you are encouraged to say, "yes", every time you obtain or renew your instruction permit or driver/nondriver license when asked: “Do you authorize a symbol to be placed on your license indicating your consent to be listed as an organ, eye and tissue donor in the donor registry?" so your information remains current.

What will the symbol on my license look like?
organ donor symbol as shown on license plateThe symbol is a red heart with a green ribbon going through it with the word “donor" above the heart. It will be on the front on your driver/nondriver license.


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Do I have to sign a donor card or my driver’s license?
No. You do not have to sign a donor card or your driver license. It is just one way to document or record your decision. Read “How can I become a donor" for other ways to record your decision.

What happens to my decision to make an anatomical gift if I lose my instruction permit or driver/nondriver license?
Suspension, expiration or loss of your instruction permit or driver/nondriver license does not invalidate your gift. If you have questions related to the suspension, expiration or loss of your document, please contact your local driver license office.


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