Additional Resources
National & Regional Resources
- American Heart Association
- Save Babies Through Screening Foundation
- Baby’s First Test
- March of Dimes
- National Newborn Screening & Genetics Resource Center
- Centers for Disease Control and Prevention
- Health Resources and Services Administration
The Parent’s Guide to Newborn Screening: These Tests Can Save Your Baby’s Life - Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children
- Genetic Alliance
- Heartland Regional Genetics & Newborn Screening Collaborative
Family Support & Advocacy
- ALD Family Support - Adrenoleukodystrophy Community - ALD Alliance NEW
- American Sickle Cell Anemia Association
- Children's PKU Network
- Congenital Adrenal Hyperplasia Research Education and Support (CARES Foundation)
- Cooley's Anemia Foundation, Inc.
- Cystic Fibrosis Foundation
- FOD Family Support Group
- Hunter’s Hope Foundation
- Maple Syrup Urine Disease (MSUD) Family Support Group
- National Health Care Transition Center
- National Urea Cycle Disorders Foundation
- NBS Connect
- Parents of Galactosemic Children, Inc.
- Sickle Cell Disease Association of America, Inc.
- The Magic Foundation
- National PKU Alliance / My PKU Binder